Dystonia: Resources
Benign Essential Blepharospasm Research Foundation, Inc.
PO Box 12468
Beaumont, Texas 77726-2468
Tel: (409) 832-0788
Fax: (409) 832-0890
E-mail: bebrf@sbcglobal.net

Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905
Tel: 312-755-0198
In Canada: 800-361-8061
Fax: 312-803-0138
E-mail: dystonia@dystonia-foundation.orgg

National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Tel: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD: (203) 797-9590
Fax: (203)798-2291
E-mail:orphan@rarediseases.org

National Spasmodic Dysphonia Association
One East Wacker Drive Suite 2430
Chicago, IL 60601
Tel: (800) 795-NSDA(6732)
Fax: (312) 803-0138
E-mail: NSDA@dysphonia.org

National Spasmodic Torticollis  Association
P.O. Box 5849
Orange, CA 92863-5849
Tel: (714) 516-1824 or (800) HURTFUL (487-8385)
Fax: 414-662-9887